MS Australia has launched a new educational video resource to help explain and demystify the complex and often invisible disease that is now said to impact more than 33,000 Australians.
The video, ‘What is MS?’ aims to educate the general public and people living with multiple sclerosis (MS), particularly those newly diagnosed, about the causes, different types of MS and the common symptoms associated with the condition.
MS Australia Chief Executive, Rohan Greenland says most Australians know that MS means multiple sclerosis, but don’t really have a very good understanding of what MS actually is.
“MS affects everyone differently. People living with MS will sometimes be well one day, and then be quite unwell the next,” says Mr Greenland.
“It’s really important for employers, for family, carers, and for others in the community to have a better understanding of how MS impacts people living with the condition.”
MS Australia President, Associate Professor Des Graham lives with MS and agrees that there is an inherent challenge in trying to explain to the general public what MS is.
“The public see someone with no visible symptoms and naturally struggle to understand the challenges that individual is dealing with, or incorrectly assume there’s nothing wrong with them,” says Associate Professor Graham.
Of even greater concern, Associate Professor Graham says that lack of understanding extends to areas of government support such as the NDIS (National Disability Insurance Scheme).
“Too often, people living with MS are denied the disability support they require and deserve,” he says.
“If you’ve got MS and you’re in a wheelchair, the Government may provide the support that you require, but if your symptoms are less visible, you are too often left out in the cold.”
The launch of the video comes in the wake of new prevalence data released by MS Australia in February 2023, which shows the number of Australians living with MS is increasing at a significant and accelerating rate.
The latest data shows that 33,335 Australians were living with MS in 2021, an increase of 30% over the four years since the previous update in 2017 (25,607).
Mr Greenland says that with MS on the rise, the video is equally valuable as an awareness-raising tool and a reminder to the Government of the urgent need to invest more in MS research.
Associate Professor Graham agrees and says the video also contains a strong message of hope.
“For over 50 years MS Australia has led the world in ground-breaking research to help improve the lives of Australians living with MS,” he says.
“With MS on the rise, MS Australia is now doubling its efforts to advocate for greater government investment in MS research, that will bring us closer to treatments that will slow or stop disability progression for everyone.”
To view the ‘What is MS?’ video, visit: youtu.be/iT2Vr4BLXfQ.
