Australian researchers at the Prince of Wales Hospital are launching are 2-year study to better understand the psychological and cognitive challenges faced by young cancer survivors aged 15-25.
The research aims to provide critical insights into how survivors can successfully navigate life post-cancer treatment, reducing the risk of mental health issues and ensuring they thrive, not just survive.
Mental and cognitive toll of cancer survival
Surviving cancer as an adolescent or young adult (AYA) comes with significant challenges, particularly in terms of mental health and cognitive abilities.
Studies show that these issues often peak after cancer treatment, at a time when young people are expected to return to school, work and their social lives.
Survivors’ reintegration into ‘normal life’ can be daunting, especially after confronting their mortality and having spent extended periods of time removed from everyday routines.
“Cancer survivorship isn’t just about reaching the end of treatment, it’s about the beginning of life after cancer,” says Associate Professor Ursula Sansom-Daly at UNSW Sydney, clinical psychologist at the Sydney Youth Cancer Service and leader of the study.
“The journey is different for every individual, with long-term effects often
carried over from treatment. We want to ensure that these young survivors not only live but thrive.”
The scale of the issue
Research shows that around 25% of AYA cancer survivors report clinically significant mental health issues, with 18-53% report cognitive impairments, such as memory and concentration difficulties.
These challenges can hinder education, employment, and social engagement, which can result in lasting mental health and economic consequences.
The study’s goal
The study, supported by a $242,000 grant from the Prince of Wales Hospital Foundation, seeks to address a critical gap in care by developing a needs-based support model.
The goal is to ensure that young people receive the right support at the right time.
Dr Joanna Fardell, a senior research fellow at UNSW Sydney, a neuropsychologist at the Western Sydney Youth Cancer Service, and co-leader of the study, explains: “Cancer treatment can cause significant cognitive challenges, especially for those with cancers affecting the brain or central nervous system.
“Memory and focus issues often prevent survivors from studying or working effectively, leading to a loss of confidence and further psychological distress.
Our study will provide much-needed data on how to best identify and support these young survivors.”
Call for participants
The study is actively recruiting young cancer survivors who have recently completed treatment.
Those interested in participating can contact the Sydney Youth Cancer Service at Prince of Wales Hospital for more information.
Holly Zamboni, CEO of the Prince of Wales Hospital Foundation, emphasises the importance of this research: “The Prince of Wales Hospital Foundation is proud to invest in this critical study, which aligns directly with our mission to support world-class healthcare.
“This research demonstrates how the innovations we support lead to enhancing patient outcomes, improving treatment pathways and elevating health care for our community, locally and globally.”
For more information or to participate, contact the Sydney Youth Cancer Service at (02) 9382 5161.
What this means for pharmacy
Pharmacists and pharmacy staff play a crucial role in supporting young cancer survivors.
Here’s how you can make a difference:
- Encourage participation: Inform and recommend eligible young cancer survivors enroll in the study to contribute to vital research.
- Recognise post-treatment challenges: Be aware of common issues among AYA cancer survivors, such as anxiety, cognitive difficulties, and struggles with social reintegration.
- Stay informed: Keep up to date with the study’s findings, which will help shape future guidelines and improve AYA cancer survivorship care in healthcare settings.
