Disruptions to essential support services during the COVID-19 pandemic severely impacted the mental health and life satisfaction of Australians with disabilities, according to new research from Flinders University.
The study, published in Disability and Society, surveyed adults with disabilities who receive government support through the National Disability Insurance Scheme (NDIS), revealing a sharp decline in well-being during pandemic lockdowns.
Researchers found that before the pandemic, around half of the respondents reported being satisfied with their overall well-being. However, this figure dropped to just 38% during lockdowns.
While some improvement was noted after restrictions eased, mental health and happiness levels have yet to return to pre-pandemic norms.
Challenges contributing to decline in well-being
The study identified several challenges contributing to the decline in well-being:
- Disrupted Support Networks: Reduced access to both formal and informal caregivers created significant barriers to completing daily tasks such as shopping, housekeeping, and self-care. This often left family members to fill the gap, adding strain to personal relationships.
- Inaccessible Information: Many participants reported that government health campaigns and COVID-19 guidelines failed to account for their needs, leading to confusion and stress.
- Lack of Personal Protective Equipment (PPE): Securing PPE for themselves and their carers during lockdowns was another major hurdle.
“Our findings highlight the gaps in support services created by the pandemic and the immense toll it took on daily life for those relying on NDIS home supports, underscoring how essential continuous, reliable support is for Australians with disabilities,” says Professor Joanne Arciuli from Flinders’ Caring Futures Institute.
“The reduction in available support services limited access to basic daily activities, contributing to feelings of isolation, insecurity and loss of independence, and sometimes adding stress to familial relationships and friendships, further impacting participants’ mental and emotional well-being.”
Voices from the Community
The survey was designed by Dr Darryl Sellwood, a researcher with lived experience of disability, ensuring that the study captured nuanced perspectives.
Some participants shared positive experiences, such as tighter bonds with family members or discovering new coping mechanisms.
However, these moments were overshadowed by the widespread sense of isolation, insecurity, and reduced independence.
“In future, there is a need for streamlined communication strategies that consider the needs of all individuals, particularly those with disabilities who may require additional support or resources that are adapted to their specific needs,” says Dr Sellwood.
‘An Urgent Call to Action
The researchers are urging policymakers and healthcare providers to prioritise inclusivity in future public health responses.
“Our study serves as an urgent call for action, urging policymakers and healthcare providers to recognise the heightened vulnerability of Australians with disabilities during times of crisis,” says Dr Sellwood.
“Future policies and public health responses must prioritise inclusivity by ensuring that individuals with disabilities are not only considered, but actively involved in the planning process.”
